Blog Archives
Well I’m sick and I have stuff to say.
I don’t write often enough, but here I am.
On July 10th I was diagnosed with oral shingles. I had shingles in my throat, mouth and tongue. I couldn’t swallow, I couldn’t eat.
On July 11th I woke up with the left side of my face drooping. I looked like I had a stroke. Thankfully, the ER doctor at St. Michaels in Silverdale knew something was awful and I was admitted. Long story short, I have Ramsay Hunt Syndrome. Ramsay Hunt Syndrome is a type of shingles that attacks the nerve in your ear. This is the nerve that spreads throughout your face. The left side of my face is about a half inch lower than the right side and my eye doesn’t close unless I tape it.
Justin Bieber had Ramsay Hunt Syndrome. It’s good in a way because its brought this rare type of shingles into the light. It takes months and sometimes years to get better.
At the hospital I was given IV antiviral meds as well as steroids. The pain is unbelievable. I spent six days in the hospital bed, most of the time curled up in a ball. I had my iPad playing old videos constantly at low volume because my ear hurt too much to use my ear buds and I didn’t want the noise to bother my nurses.
My nurses were wonderful. They were kind, the were generous with the drugs and they spent time talking to me. They made me feel like I was human.
What did I look like? Well, I looked like a Picasso painting gone south. I couldn’t look in the mirror without horror.
Well I couldn’t see much anyway.
Ramsay Hunt Syndrome can and does cause you to go blind on that side and you can also go deaf. I have single sided vision and hearing so this was an emergency. I believe I’m going to be ok with the sight and hearing but this is a long process. I can’t see well yet.
Besides the physical hell I’ve been going through, the huge doses of steroids are taking a huge toll on me. I can’t sleep, the insomnia from the drugs is exhausting.
But most importantly, my mind is starting to remember very clearly things that have happened to me that have been buried. Steroids and I have a history of this. It was years ago when I was on steroids that I was having awake dreams and one of those dreams I saw a small girl. Innocent blue eyes. And I realized it was me. I was an innocent victim. Not my fault at all. It saved me.
It always comes down to childhood crap, doesn’t it? Being sexually abused rears its ugly head at the worst times.
I am being inundated with memories. Memories so very clear I can remember clothes I was wearing, smells I was smelling and the gut grabbing fear of knowing that this shit was going to happen again.
But it’s not frightening me, this reliving of these horrors. It’s like I’m watching from a distance, far away, seeing these things, these people, not with shame but with kindness and sadness for the little girl that was almost destroyed by psychotic monsters. I had no idea that these things happened until I did. And then it was wow, what assholes and why were these people never put into jail or punished in some manner. But I’m not upset, I’m interested. And as fast as these memories hit, I type them out. I’m thankful for my career as a paralegal as I can pretty much type as fast as I can think. This is important since I can’t see very well yet.
Putting the memories onto paper helps me. Once they’re on the paper the power disappears and I am fine. I have my cousin Lorraine to thank for this habit.
And you know what? I am fine. No matter how the evil people tried to destroy me, they failed. I am strong and I am a happy person. Well normally I’m happy, right now I’m just plain sick from this damned disease.
My question is: Do I post these? I’ve written myself letters. They are extremely graphic because they have to be. I can’t try to soften these experiences, I need to get them out in the open, let the bleeding begin so I can look at them, acknowledge them and go on with my life.
To say I feel relief is an understatement. What I feel is immense sadness because my childhood was taken from me from the time I was a toddler, relief that it’s over and finally, I feel whole. I didn’t know I wasn’t before, but I feel like a whole human being right now.
But I don’t know if I should put this out there where the internet can be cruel.
Its very possible that nobody reads anything I write anyway so this may be a moot point, but I thought I’d get it out there.
Ugh.
I am so triggered every day by this Epstein horror. Believe the children. FFS! Believe the children.
I am so triggered every day by this Epstein horror. Believe the children. FFS! Believe the children.
I am so triggered every day by this Epstein horror. Believe the children. FFS! Believe the children.
I am so triggered every day by this Epstein horror. Believe the children. FFS! Believe the children.
I am so triggered every day by this Epstein horror. Believe the children. FFS! Believe the children.
I am so triggered every day by this Epstein horror. Believe the children. FFS! Believe the children.
Regrets
A mother’s influence on her children is funny. You love her, of course, she’s your mother after all. She gave you life, she spent years caring for you. You were her mom-reason, her life’s work. Her devotion and love were something you took for granted. When I needed anything, there she was, my mother–eager to help, even when her help wasn’t actual help but a semi crazy idea that any sane person could see was nuts.
But every once in awhile, my mother’s ideas hit a home run and everyone quietly and grudgingly realized she was pretty fucking clever.
For example: When I was little, our dog Penny had 11 puppies. (No clue why I remember the number 11.) She birthed them in the cellar of our old home. One of the puppies, eyes not open yet, fell down the drain in the cement floor. The puppy’s plaintive cries echoed loudly through the pipe into the ears of the helpless adults. The relatives told her to fill the drain with water–drown the puppy to put it out of its misery. There were plenty of other puppies anyway. My mom, watching Penny who was whining and pacing around the drain hole, was horrified.
An idea came to her. She grabbed her prized Electrolux, shoved the long hose down the drain and hit the power switch. Up came the tiny puppy, reunited with its anxiously awaiting Penny. Mom was clever. Oh yeah, she was as loyal to her animals as she was to her children.
But more often than not, despite love, my mom could irritate the absolute shit out of me. The unwelcome advice, the constant questions, the jokes and OMG she spoke in puns. Oh and that laugh after one of her jokes. Ugh. It can make you want to pull out your eyelashes, one by excruciating one. Funnily enough though, my friends thronged around her like she was some dumb ass comedian.
All this baby love aside, I had a shit show for a childhood. Not only were we poor, we were stinking poor. The type of poor neighbors pitied all the while furtively looking away. My sister and I were surrounded by pedophiles. Father, uncle, neighbor, grandfather, everyone. There was no place safe for us. It was a cesspool of abuse for me and my sister. Something that my mother didn’t notice.
I grew up composing a semi-unwritten list of things my children would never have to experience. It grew as I did. I would not, could not, be anything like my mother. That constant laugh, the irritating puns, the practical jokes and, most importantly, the hidden depression disguised by that raucous laughter and jokes.
When my son was born, Mom had “suggestions. Lots of them. They were all so very wrong. In retrospect, they probably weren’t wrong but I was defensive. First time mom power! I didn’t need suggestions, dammit. I read Dr. Spock, by God. Cover to cover. Twice. I vehemently knew what to do. Leave me alone! But the super experienced baby making machine wouldn’t, couldn’t stop. After all, like a good Catholic girl, she made a lot of little humans. And she loved babies. So she knew this shit like the proverbial back of the hand.
But like it or not, with all her faults, she’s still there alongside me. No matter how alive she isn’t, I can still feel her voice, her laugh, and those damned hugs that kept you hugged for a long time.
She died when she was 45 from a miserable, pre-effective chemo cancer. I was 21 when she moved in with me. I took care of her. When I turned 22, she died, leaving behind her youngest for me to raise alongside my own two year old.
Most of the time it’s so subtle I’m unaware of her influence. But there it is, imprinted in my soul. She was a guilt ridden strict Catholic, hence all the damn babies. Every Sunday she would walk down to church. Late. Always at least a half hour late for a one hour service. I realize now her consistent lateness was her own subconsciousness defying the heartless cruelty that was the Catholic church.
How is this affecting me as an adult? Well, I had that list of course. I tried to follow it. Like her though, I’m fiercely loyal to my family and friends. Stupidly loyal, no matter how wrong they might be. Puns? I got ‘em. I love animals. I love love love my kids, my grandkids and my great granddaughter. I walk all the time. She used to say we were ancestors of gypsies who wandered from town to town. She walked everywhere. And crap, you should hear me laugh. Or push my advice onto my kids, their kids and my grandkids.
For all of her married life, my mother was treated like shit by the relatives as well as my father. Kids are sponges so we grew up sort of scorning her, retreating from those bear hugs. I am ashamed of how I felt about my mother. Don’t get me wrong, I loved her and treated her well, but dammit, she died so soon after my teenage years, I didn’t get a chance to tell her I was ok and thank you for trying your best even when you were constantly overwhelmed by us messed up kids.
Sometimes the regret overwhelms you. Yes, there is always the losing-her grief, but when regret comes for a visit, it’s always a surprise. It hits you like a punch in the gut.
Happy birthday, Mom. Wish I had one more day with you. Or one hour. Or one minute. Or just one of those damned bear hugs. Dammit.

